Not To Be An Asshole But I Think A Lot Of Disability Discourse On This Website Cannot Comprehend The

self-proclaimed radical leftists: in the communist utopia that exists only in my head, everyone will work, by which i mean a full-time job in the post-industrial revolution sense. this is because work is obviously the only way one can contribute to society, and everyone who doesn't work is a parasite that will be eradicated in my Communist Utopia™. i don't even care about the products or purpose of people's labour because, as everyone knows, employment equals morality and so having a job is inherently virtuous and not having a job makes you a lazy leech who doesn't deserve to live. trust me, this is a very communist idea. i'm practically an expert because i read 1.5 tweets about marx.

what? omg why are you making this about disability, i was obviously talking about normal people 🙄 if you're disabled, you have an excuse to be a useless waste of resources who can't contribute anything 😊 in my ✨ Communist Utopia ✨, you don't have to work if you're not able to. don't worry, we'll have rigorous and dehumanising tests to determine if you're disabled enough or if you're just a lazy faker! this process is infallible and has no drawbacks whatsoever for disabled people. have you considered that maybe you're the real ableist for criticising me? 🤔 anyway, have i mentioned how much i love employment and also the taste of boot leather

Me: You know how when you were a kid and you’d wish that you’d get sick or injured in a way that would justify why you didn’t live up to your potential?

Everybody, apparently: No?

I know everyone sees Itto as Genshin's comedic relief, but I'm telling you all, Alhaitham is actually the funniest character in Genshin Impact.

According to the fandom, he's hot, he's famous, he's the one in charge of the house...

But according to the people of Sumeru? Dude became grand sage and not a single NPC around the city had a thing to say about that. Sachin's son got his ass beat and he didn't even know who Alhaitham was; it was just "some guy in green." People on the streets are said to not even notice Alhaitham, let alone be able to identify him by appearance. The only time we ever hear NPCs directly commenting on Alhaitham, it's Siraj's collective who hate Alhaitham's guts. Dori refuses to work with him. Random Eremites call him a lunatic within two minutes of meeting him.

Alhaitham's reputation in Sumeru is "Who? Ah, that guy? I heard he's weird," and then everyone moves on.

Meanwhile, Kaveh is literally famous enough to have an epithet ("the Light of Kshahrewar"), is the lead architect on entire city redesigns, and was trusted before Alhaitham's take over to do work on the Akademiya itself. He built the most famous landmark in the rainforest outside of the Divine Tree. He's well-known enough that people bank on his reputation to start scams; people send their children to take courses with him in the belief that it will bless them with successful future careers. He's known for philanthropic endeavors to help the poor and disadvantaged. He won the Interdarshan Championship. This is the Sumeru equivalent of winning an Olympic gold medal!!

Kaveh is the Taylor Swift to Alhaitham's Travis Kelce. They might have independent success, but in every measurement of public sentiment, Kaveh vastly outshines Alhaitham, and the fandom should really take a step back and think about how hilarious this makes everything about their situation in canon.

For the few in Sumeru who are actually paying attention, sure, Alhaitham is the (former) acting grand sage who makes a pretty penny and owns the house Kaveh lives in. For the average majority of Sumeru's citizens who are way more likely to know Kaveh? Alhaitham is literally just "that guy who is shacked up with the Light of Kshahrewar."

Kaveh's efforts to keep where he lives a secret just makes him come across like one of those reclusive types of artists who value their privacy. Half the public in Sumeru probably think he just prefers to keep himself and his lover out of the limelight. Kaveh was so busy pretending not to be poor, he forgot that every ounce of pretending he does just helps him keep his own celebrity status. The harder he attempts to act secretive about where he lives and with whom, the more it comes across as "Please respect this famous person's privacy and stop asking about the details of his relationship."

And Alhaitham, for whom being "that guy who is shacked up with the Light of Kshahrewar" is THE life goal? Everything is going according to keikaku. Kaveh has convinced the entirety of Sumeru that he and Alhaitham are in a relationship, all without Alhaitham having to lift a finger. The more determined Alhaitham gets to fly under the radar, the more it looks like he's Kaveh's kept man. If you aren't living with him because you're broke, then why are you living with him, Kaveh? There's simply no way for Alhaitham to lose.

It's just... so funny.

seeing people my age talk about how scared they are of memory loss, which they only associate with old age, is so surreal to see as a 24 year old who has actively experienced memory loss for a long time now

there are causes for memory loss besides dementia and alzheimer’s, i hope y’all know that. dissociative disorders, trauma, brain injuries, thyroid problems, even just stress and lack of sleep can fuck up your ability to store, process, and access memory. and that’s just a few of the many causes i can think of off the top of my head right now.

please stop treating disabled people like some scary “other” that you might become only in the distant, decades-away future. we are your age, too. you may become one of us sooner than you know. stop acting like memory loss marks the end of a life, when so many of us have so much living left to do!

Saw a post and it really got me thinking.

The post was talking about why don’t lower support needs, higher masking individuals even believe that higher support needs, low masking, “severely autistic” people, exist. And that got me really thinking. Because, I do think they know we exist. I just don’t think they want too.

I don’t think they want to know we exist. They know we exist, but keep us on the back burner. They live in ignorance bliss of us. I have what some people would think of as severe autism. Im nonverbal (although nonverbal later in life. But outside people don’t care about that. They see nonverbal as nonverbal), I’m intellectually disabled, need help in everyday life, etc. but I’m in the middle. I’m moderate support needs. To me, I’m not severely autistic. But to society, I am considered and seen as severely autistic because society doesn’t have the understanding of moderate autism yet. They don’t understand it. And I’ve seen more times than I can count that severe autism doesn’t exist. Not because they don’t believe in severe autism the label itself because it’s “harmful” but because they don’t believe that it’s just caused by autism. They often believe that’s it’s caused by comorbidities. Like ID, or cerebral palsy, or apraxia/dyspraxia, or mobility issues, or genetic conditions, and so on. Although none of this is bad.

They believe that autism itself can’t create severe autism. Which…isn’t true. Before, it was believed that severe autism was the only type of autism. That it was the only type that existed and if you weren’t severely autistic then you weren’t autistic. Then more research happened, then social media happened, and now..white, lower support needs, high masking, late diagnosed individuals are the majority of what’s being centered. And, that isn’t bad. We need awareness of all autism. But when one type of autism gets centered, it becomes a problem. It becomes the new norm. It becomes what everyone expects out of autism now. Which, isn’t true. Autism all of all types and traits exists. Autism of all support needs exists.

When people say severe autism doesn’t exist, they’re ignoring and saying that a BIG percentage of autistic people don’t exist. They’re saying that we aren’t real. That we aren’t on the internet, or in the communities they live in, or in their schools, or whatever. We’re everywhere. Severe autism is still a thing. It isn’t a misdiagnosis. It isn’t from comorbities, although if someone’s autism is more severe from comorbidities then that isn’t bad.

I think a lot of people need to be more aware of severe autism. And not just severe autism like me or my mutuals, or the people you see here on tumblr. But the ones with even MORE severe autism. The ones who live in group homes, residentials, institutions, and so on. The ones who aren’t on the internet. The ones who aren’t here blogging about their lives. We need to be aware of them too. We need to believe they exist, and believe that their autism is real.

Don’t erase severe or profound autism.

Literally this, as a fellow intersex person who cant really pass for either, yk without procedures i don't want anyways. I stand by you, it's bullshit that we have to identify ourselves to the government like it's some one or the other box. Stand with us because it's not just our rights we're fighting for. It's human rights. Lets all remember that.

Feeling extremely disappointed in the community response to Trump's gender order regarding X gender markers on documents. Can y'all quit with the victim-blaming and "I'm so glad I don't have an X gender marker, I knew it was a bad idea" statements for two seconds to support those of us who are targeted by this?

I have X on all of my documents. Birth certificate, passport, ID, you name it I have an X on it. I'm intersex & trans. I'm percieved as ambiguous 100% of the time and I can't pass for shit. Stealth is not an option for me, I am visibly intersex/trans no matter what.

Having either M or F on my documents wasn't any more feasible than having an X on everything at the time I got my documents. Which I had to work my ass off to get, by the way, because I was homeless and had no documents and I needed to obtain everything from scratch, which of course is made as hard as possible to do. (How do you provide proof of identity without any identity documents? How do you provide proof of address without an address? How do you pay for any of this when you can't even afford your own groceries and you get all your needs met through local mutual aid? How do you drop anything off or attend interviews or court without transportation?)

Goddamn right I was getting an X on my documents after having to go through hell to obtain them. If I had to work that hard for them, my documents were going to be how I wanted them.

Now I'm being told the president is trying to invalidate my documents, that depending on how things go I may be held if I try to go anywhere due to my passport having an X gender marker, that we don't know the ways this will be enforced and whether I will still be able to use my documents or not, and my trans community is saying it's actually my own fault for having an X gender marker in the first place and that I was just begging to be discriminated against by having one.

I am in a very vulnerable position and I should be supported by my own community when anti-trans anti-intersex discrimination targets me and people I care about. Y'all are dropping the ball and abandoning your siblings when we need each other most.

Also, for the record, I believe that no documentation should have gender markers. However, the US requires gender markers on documentation at the moment and that fucking sucks. It seems like this will be the case for the foreseeable future. The way people have been saying "nobody should get an X gender marker because gender markers shouldn't exist" just feels very "your strategy pales in comparison to my strategy, firebombing a Walmart" and then not firebombing a Walmart. While we can and should work towards gender markers not existing in the future, people with X gender markers exist right now and maybe y'all should support us instead of constantly throwing us under the bus.

for everyone who needs a little reassurance and hope.

Remember, everyone, we still have a system in place and the Constitution still exists. We are not in a full dictatorship, yet. We can not give in to despair at every single thing this new administration does, because those checks still exist.

And until they don't - and that's a big if - we must keep our heads about us. Do not panic. Do not fall into apathy. Do not do anything irreversible.

The system will not save us, but it can protect us from the worst possible outcome for now.

And we will continue to fight even once it can't or won't.

I'd there anything that you'd like a prosthetic limb to be able to do? Like something that's not on the market but you could slip on to accomplish a task and then easily remove before it gets cumbersome?

I'm sorry i sat on this ask for so long, it's been very difficult to write an answer to this question that i feel is both honest and useful, but here's my best attempt at answering with what i consider to be an okayish amount of context...

I'm assuming you're asking because this post of mine blew up and got a lot of attention, and it looks like you're a maker that's keen on designing things to help disabled people and that's great! there are a lot of areas where products just don't exist but are of great help or need to people, and filling that gap is really really great! lots of people have lots of different needs, and many disabilities and situations can be helped with technological solutions, much of which need more development, both professionally and more grass roots.

but when it comes to my situation, ie upper limb amputee, i cannot stress enough: the problem is not prosthetic technology, the problem is other people, and ableism.

what i want people to focus on is that i can do almost everything i need to for myself without a prosthesis, using just my elbow, my nub (the soft squishy end of my residual limb), and a taking my time. a bit more awkward, a bit slower, more trips to the fridge and back, but i can do it. the things that i can't do myself, I'm lucky enough to have people to help me and happy to do so.

but what people actually focus on is prostheses, people love prostheses... so let's talk prostheses!

I have a myoelectric prosthetic "hand" - a big robot gripper that i can control with intentional nerve signals picked up via electrodes inside the socket that sits over my forearm; telling it to open and close on command, and controlling how fast it does so. the initial reason i wanted one was for soldering, because electronics is an on and off hobby i wanted to continue. I'm sure you know that through-hole soldering is at least a three handed job even for the regularly limbed, so i thought i needed it for that at least, and figured it would be handy (hah) to just wear all day for any task i might want two hands for.

well, in the four years of training and rehab and practice since... I'm fairly confident i don't actually need it for soldering, let alone anything else. my elbow grip and dexterity is good enough i can easily hold and aim a spool of solder without my prosthesis. i sometimes put it on to take out the trash, but that's just a time saver, it takes less trips and is faster than slinging bags over my nub arm. it has a little led flashlight in it that's useful at night outside sometimes? and as alluded to in the original post, it's got a small tip that can press little buttons that my nub can't, and that's the role i most often reach for it to fill.

but myo prostheses are a hassle to put on, often taking several attempts to get positioning right, it's hot and sweatty, there can be pressure sores, and it's real heavy in a way your shoulder never really gets used to. these are not really technological issues that need more research or smarts to solve, they're pretty fundamental limits of trying to attach any kind of medical devices to the human body. if i really had any big necessary use case for absolutely needing two hands, I'd go back to physical therapy and re-train to use a body powered prosthesis; the ones that secure with nice soft leather straps and use your opposing shoulder to control hook grip with tension wires. technology that hasn't changed in several centuries because we kinda already perfected it... it's low tech, reliable, has built in proportional control and feedback, and never features in science fiction because it's just not cool enough.

so why do i still bother? why keep my prosthesis, maintain it, have the socket padded so it keeps fitting, continue the slightly painful muscle control exercises instead of letting them atrophy and the damn robot hand sit on the shelf forever?

the problem is other people, and ableism.

when I leave the house in my natural body, nub on display for all to see (under an arm warmer because perpetually cold stump is a problem seemingly every amputee has to deal with)...

people stare. they notice me from a distance, no matter what i wear, how i carry my body. but it's not just staring. it's glaring, it's disgust, it's fear, it's dehumanisation. i have people recoil in horror, cross the street to avoid me, pull their children close to their bodies as if they might start dropping limbs if they get too close. people have stopped me in the street, from behind, demanding to know "what happened", I've had to get off trams at random stops to escape little old ladies insisting i disclose my highly traumatic medical history and that I'm being rude and uncooperative for not "educating" them on "such a fascinating curiosity"... or best yet, the one all my wheelchair using friends know inside out: forceful unwelcome "help" from strangers without even a hello, yet alone an ask. i once had a man leap to his feet and begin thrusting his hands towards my crotch because i wedged a water bottle between my thighs to unscrew the cap and he decided i was clearly incapable of doing it myself... and this isn't even getting into the ways that medical professionals treat me differently.

i go outside in my natural body, and I'm treated as a freak.

you know what happens when i go out wearing my prosthesis? children smile, adults mind their own goddamned business, leave me alone, and at absolute worst I've had a total of two people in four years talk to me about it, politely introducing themselves before saying "that's neat, how does it work?"...

because fiction and futurism have given people so many deeply ingrained fundamental ideas about prostheses and amputation that I am treated more like a human being while wearing a bulky robot claw with electrodes pressed into my skin, than when i dare to exist as i now naturally am.

this is also borne out by the hundreds of notes on my original post declaring we need to invest more, research more, design more, so that prosthetic technology is better and "works" and is cooler... and literally nobody asking why a piece of technology was designed in such a way that i needed to use my nose, needed to hold two buttons down simultaneously half a meter apart that are barely fingertip sized, when either of them being a toggle would work - a firmware fix that would take 30 seconds to implement if anyone actually thought about the real technological needs of limb different people, instead of scifi fantasies about improving prosthetic technology until its "indistinguishable from the human body", as if that goal should be self evidently desirable.

the actual technological solution to this situation, by the way, is a bracelet with a chopstick glued to it.

so.

*deep breath*

I'm sorry this was long and angry, I hope you can sense that my anger isn't directed at you, the question asker, but broadly at everyone and the way society perceives amputees/limb different people... and I hope anyone who reblogged my original post also shares this, because damn did tumblr miss the point of it!

to finish off, I'll give you the snippy snarky bitch response i originally had in consideration, before I decided to spend several hours on paragraphs of furiously slow one-thumbed attempt at shifting my audience's perception of prostheses... because legit it's great that you want to know how things can be improved for disabled people through technology! it's just that in this one particular case...

if you want to design some technology that would be most helpful to me but is totally absent from the current market, I'd like a portable pocket sized device that projects a psionic field to make ableds mind their own fucking business and just treat me like a human being when i go outside :3

Small fantasy worldbuilding elements you might want to think about:

A currency that isn’t gold-standard/having gold be as valuable as tin

A currency that runs entirely on a perishable resource, like cocoa beans

A clock that isn’t 24-hours

More or less than four seasons/seasons other than the ones we know

Fantastical weather patterns like irregular cloud formations, iridescent rain

Multiple moons/no moon

Planetary rings

A northern lights effect, but near the equator

Roads that aren’t brown or grey/black, like San Juan’s blue bricks

Jewelry beyond precious gems and metals

Marriage signifiers other than wedding bands

The husband taking the wife's name / newlyweds inventing a new surname upon marriage

No concept of virginity or bastardry

More than 2 genders/no concept of gender

Monotheism, but not creationism

Gods that don’t look like people

Domesticated pets that aren’t re-skinned dogs and cats

Some normalized supernatural element that has nothing to do with the plot

Magical communication that isn’t Fantasy Zoom

“Books” that aren’t bound or scrolls

A nonverbal means of communicating, like sign language

A race of people who are obligate carnivores/ vegetarians/ vegans/ pescatarians (not religious, biological imperative)

I’ve done about half of these myself in one WIP or another and a little detail here or there goes a long way in reminding the audience that this isn’t Kansas anymore.

me rn

can I come over and not speak